The Weekly Sy with an update

Facetimed with The Boy last night.

The Dane arrived in Denmark safe and sound and is in the good company of her People. That is answered prayer.

The Boy had his blood drawn yesterday and his counts were down to 14,000 from 21,000 on Monday. The sadness and discouragement were written plainly on his face.

He will have blood work done on Saturday, and again on Monday before he makes a decision on travelling. If his platelet count is not heading in a considerably higher direction, he will not be able to go.

He has had ITP related disappointments before, but a missed birthday party or outing, being benched from his beloved skateboard or the much lesser loss of missing large chunks of 8th grade middle school, simply do not compare to the loss of this trip.

Prayers are appreciated. We know nothing is too hard for God.

A little sweetness to temper the bitter? This is one of Sy’s favorite places to sleep. I have received many pictures, and even seen him on Facetime, lounging in his Precious.

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The Dane says he can be found in the bathroom a lot too.

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Or in the window. He’s a good sleeper.

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Hard to believe it’s August first, the beginning of the end of summer. Enjoy your weekend.

In Need of Prayer

I am producing a list today, for lack of anything else to offer.

Here we are on the last day of July. How did that happen?

It has been unseasonably cool here in the mornings, not that I am complaining. Walking has been much more pleasant.

In some ways I feel we have gotten a few things accomplished around here, in others, not so much.

The last few days have been occupied by concern for our Boy.

His ITP is rearing its ugly head.

After a month or so of having his platelet count kept afloat by steroids, his platelet count has sunk below the surface.

Just in time to joopher up his trip to Denmark.

He and The Dane are very frustrated with his doctor in Chicago. To put it mildly.

His doctor had told him about a new treatment she wanted to try called Promacta. She said it works in 90% of the patients. That’s encouraging!

But when she saw him toward the beginning of the July, and it was apparent the steroids were not doing their thing anymore, instead of starting the new therapy so she could monitor his reaction to the new meds, she increased the steroids again.

She knew he was leaving the country because when he left that appointment she said she wanted to see him again right before he left.

That was last Monday. They were leaving on Wednesday night.

His counts on Monday were 21,000 and she told him not to fly. They could not believe what they were hearing!

She wanted to start him on the new drug, two days before he was to leave the country, another reason she did not want him to leave.

Her timing has been truly….. inconceivable.

There was then considerable runaround trying to get the Promacta, which apparently was only in stock at one pharmacy of the 40 or so that The Dane called.

Even then the doctor had to call and have it approved because our insurance did not cover it. They do that sometimes when there is not a generic alternative.

He finally took his first pill on Tuesday.

The medicine was $6000 for 60 pills. He paid $12. Thank you Lord for insurance!

After much back and forth, they decided The Dane would leave for Denmark as planned last night. Without her husband.

If all goes well and his platelet count rises, The Boy will follow on Monday.

Minus the $500 to change his flight. There is a possibility this will be refunded if his doctor writes a note.

The Dane also has an uncle who works for the airline who has offered his services to try and help in that regard.

So far he has had no known side effects from the new meds, for which we are thankful. He said the information sheet that came with the prescription said the side effects were all pain. And blood clots. Yikes.

So The Dane is on her way and The Boy is home with his cat and his friend Critcher, who came from Ohio to babysit Sy and apartment hunt.

On the off chance that the meds do not induce platelet growth, he said he and Sy are just coming home for the duration of his non trip.

To say they are sad and discouraged is an understatement of epic proportions.

In addition to screwing up their vacation, it is also jeopardizing a wedding reception The Dane’s parents have planned for their friends and family who were unable to attend their Chicago wedding last December.

Also there is uncertainty as to when they will be able to visit with her people again, because once she applies for her green card she cannot leave the country until it is approved. We know of one that took almost a year.

Angst abounds.

But they have seen much evidence of the Lord intervening on their behalf, that always helps.

If you think of him, prayers would be appreciated.

How about a happier subject?

I don’t know about you, but this makes me happy.

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I am sincerely hoping there will be coleus in heaven.

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Just as I am sincerely hoping there will not be Japanese beetles.

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They are making a big old mess on the sweet potato vines.

I think we have driven them away. There were no unwanteds this morning and only 2 yesterday.

Enjoy your Thursday. Thank you for your prayers, they availeth much.

The Wedding of Miss Potter

On Saturday night Mousey’s friend Beatrix Potter was married to her honey Jeremiah. The couple met at Moody, where they still attend. It seems like yesterday the girls went to prom!

Here are Mousey, Beatrix Potter and Chip in 2012, looking all loverly.

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Mousey was a first time bridesmaid. A VERY special thank you to Capri Deb for the alterations on her dress!! Mousey miscalculated on her first order, then had to buy a second dress from The People’s Republic of China to fit her properly in one particular area, and then that required it to be altered in other areas. Deb was a life saver!!!!!!!

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On a fun side note, Mousey did most of the bridesmaids hair. She did a good job, it seemed to stay all night!

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Here is our old friend The Button, who is marrying her very own honey in two weeks!!!! She was getting a little emotional when she saw the bride walking down the aisle.

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I am going to apologize right here and now for the very poor pictures. It seemed I always had a bad angle, bad light or else I just forgot I had a camera.

The bride looked very pretty and her dress was so her!

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It was a faith filled ceremony, filled with songs and words that spoke of their love for the Lord.

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Mousey and her groomsman Jesse, from Bolivia! He stayed the weekend in our basement, along with the fellow on the right, Drew from Nevada, the groom Jeremy from Montana and his brother Will, who was in the Air Force stationed in Ohio. All out of towners!

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They had a swing song at the reception and Jesse and Mousey gave it a whirl. The stars of that segment were Button and her fiancée, they must have had lessons!!!!

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It was a pleasure to meet Jesse from Bolivia, who has a summer internship in Washington state and will be returning to Moody Bible College in a couple weeks!

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Beatrix and Jeremiah with her parents. I am telling you now that I totally lifted these next three pictures off Facebook and instagram, come and get me coppers.

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After the reception they had lanterns to light and set sail like in the movie Tangled. They were beautiful to see but there were some difficult to light lanterns and some that took off before they were ready and seemed a little fire hazzard-y!!!

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Funny story, I saw one of these lanterns on my morning walk with Jip today!!! Just the metal frame and a partially burned lantern. What was the chance of that??!!

God bless them and their new life together.

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Potent Quotable

A successful marriage requires falling in love many times, always with the same person. ~Mignon McLaughlin, The Second Neurotic’s Notebook, 1966

Here’s to matrimony, the high sea for which no compass has yet been invented! ~Heinrich Heine

The Weekly Sy

His new favorite place to hang out in the heat.

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Cuddling with the Folks.

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Soaking up the sun in front of the window.

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List of Things

I believe we are living in the dog days of summer. Things have been going on, but not much is noteworthy.

I asked The Dane to send me some pictures of last weekend from her fancy phone. She obliged me.

The Boy. Honey and Elyk. three very fine Tiger fans.

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From our surprisingly comfortable handicapped seats.

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I don’t know if I have mentioned this or not but Mousey has a thing for beards. She lives for No Shave November. The Dane sent this picture to her saying “I saw your boyfriend”. She declined. This fellow was a mystery to me. He had on regular clothes, a Tiger shirt and ball cap, was a decent looking guy, was with normal friends, carried an iphone, had a v e r y long ZZ Top beard. One of these things was not like the other.

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In other news, we have men sleeping in our basement the next couple nights. Mousey is in her friend Beatrix Potter’s wedding on Saturday night and the groom and his posse are bunking down the basement. I just met them as they were leaving for the day. They seemed like very nice fellows, which would explain why I did not hear a peep out of them when they arrived last night well after midnight.

The Ab-Cat and I went to a neighboring town to see Jurassic Park at their cute little theater. Three dollar tickets and small town vibe. It was very fun and the velociraptors were were exactly as horrifying as I remembered from 20 years ago!

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I have been walking with Jip the Farm Dog this summer on the days that I don’t walk with Keelyody. It’s nice to keep momentum going on solving all the worlds problems. I have to say that walking in Jip’s neighborhood is a far more strenuous path than my own. Her area is hilly, unlike my own flat path. Keelyody is moving into Jip’s subdivision next month, so it appears the path will be a constant. Bring it on.

My days seem to run together in a mix of walking, lawn cutting, weeding and trimming, wondering what to make for dinner, bringing food and goods into the house and toting out the trash on Sunday nights. There have been fun things sprinkled in to cut the mundane. Our Birthday Club has their annual South Haven Girls Trip next month and that is always fun.

Other than that, I will be home.

Cleaning out cupboards.

Brushing cats and getting enough fur to build a new kitten.

Watering and weeding, they go hand in hand.

Going with Honey to replace the things that wear out and break around here. This week? Spare bedroom bed frame and dehumidifier.

Alternating going to Sam’s and Meijer for groceries.

Viewing Pinterest. That takes a lot of time.

What have you been doing?

Wednesday Hodgepodge

Hi Guys, thanks for stopping by! If you would like to join us just click the button below and head over to Joyce’s to link up.

1. When I look at the sky I feel________________________________________.
Small in comparison. That God has created a really big world. Our God is a wonderful Maker.

2. If you had to run for political office, which one would you run for? Do you have any real desire to actually do this?

I would never in a million years ever want to do that!!!!!
3. What scent makes you think of home?

Of the home I grew up in or my home now?

I would say coffee reminds me of the home I grew up in. My Mother liked to entertain, so coffee reminds me of company.

I think our home smells like…..food.

4. How often do you take a step back to think about where you’re headed in life? Do you need more or less self-reflection?

I don’t think I mull this incessantly, but it does come up in thought. Especially now that we are coming up on Honey’s retirement. I don’t really like a lot of change and it feels like we are coming up on some. 
5. July is National Ice Cream Month…besides a cone, what’s your favorite food item to top with ice cream?
Strawberries in sauce. Or Sanders Hot Fudge sauce.

6. What might your autobiography be called?

 I Didn’t See That Coming. Story of my life.
7. Your least favorite mode of transportation? Why?

In the backseat of a small car. Because I am a tall girl, and Ugghhh, not comfortable!
8.  Insert your own random thought here.

We had a fun weekend! Since we didn’t travel to Chicago to visit The Boy and The Dane, they traveled up to The Mitten by train. That was a first for them and they said they liked it, except for the delays. I think if we were to travel to Chicago, other than driving ourselves, we might choose the train. I feel like I might be able to read on a train, as opposed to not being able to read on a bus or car.

We made egg rolls, homemade ice cream ( black licorice, which sounds truly heinous to me but they LOVED, and strawberry), saw the new Planet of the Apes movie (good), went to a Tigers game (lost), ate out, played some cards, did a little shopping, went to church, made chicken cordon bleu, watched some Netflix, and hit up The Value World with a handy dandy 50% off entire order coo-pin.

The Tiger game was a mixed bag. I don’t mind the Tigers or baseball. BUT, it drizzled almost the entire game and it was a very unexciting game. I usually try and stay away from the Tigers because I am bad juju for them. I have been banished from the room because they start to lose when I arrive. Sorry Boys. I had the thought several times of what am I doing at a sporting event in the rain??? I spent a lot of the game formulating a plan for if I ever went to another game. I would wear my hair up so I wouldn’t have to deal with wet bangs or felting hair, I would have a hat to keep raindrops off the glasses, and I would remember an umbrella. The whole day was damp.

It was the first time I had ever been to Comerica Park. I had previously only caused them to lose at the old Tiger Stadium. This stadium was a much bigger deal than that stadium. Mousey had a bachelorette party to go to so Elyk joined us for the day.

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It was fun to people watch. I am a little bit amazed at what some folk consider baseball appropriate attire, but mostly it was a sea of navy and orange. All of our people represented. While I did not have a shirt promoting the Tigers, it was the right color orange, so I felt ok about that.

These two looked like Tiger fans.

 

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I think the next time we gals will let the guys go it on their own. Except for The Ab-Cat, she will want to go, she is a big fan certain Tigers!

Thanks for stopping by!

Staycation Complete

The Staycation was a success! I will share more later.

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The Chicago Two are back at home with their son, who was ever so glad to see them!

No More Hedge of Death

I believe I have mentioned a time or two that we had a really bad winter up here in The Mitten. The Polar Vortex pretty much made our beautimous 180 foot hedge look like a mangy dog. It did try and regroup, but in the end, it was a lost cause.

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The one end looked spotty.

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The middle looked choppy.

And the far end just looked dead.

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Honey hired a company to come and whack it down to meet the new growth, around a couple feet. They came Saturday before we left for the Tiger game.

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It looks strange out there!

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We are looking at way more field than we are used to, but it is a welcome change. We were tired of looking at all the ugly.

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The Chicago two go home tonight so we are still staycationing. Talk to you later!

Potent Quotable

After God created the world, He made man and woman.  Then, to keep the whole thing from collapsing, He invented humor.  ~Bill Kelly, "Mordillo"

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