Edit

Thank you all so much for your sweet comments in yesterdays post! Prayers and encouragement from friends and loved ones are a kiss on the cheek from a really good God and have meant a great deal to me.

I didn’t get a chance to have The Boy read the post before I hit publish but he finally did yesterday afternoon and I have two corrections to make.

The medication he is currently having once a week for a month is Rituxin, not WinRho. He was on both 10 years ago and neither worked, therefore their names are entwined in the web of failure of my already tangled mind. Forgive my lie.

The other is more of a clarification. I said that he didn’t tell me his counts were 139,000 on Tuesday, but he said they only drew his blood on Tuesday. They didn’t tell him his number until Wednesday, when he relayed the message to me. I am very glad that mixup is resolved because I was going to have to give him a punch in the arm for that oversight the next time I was close enough to do so.

Thank you for your time and patience.

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Guys, I have something to tell you.

We are cautiously, carefully, hopefully optimistic around here.

The Boy and The Dane arrived on the Megabus a week ago last Wednesday night, the former feeling horrible, achy and nauseated, the latter doing what she could to make him comfortable, both feeling the dread of discouragement.

The Boy had been released from the hospital the Sunday before and had spent the next few days going from bed to couch with his cat, with side trips to the bathroom to throw up what little he had managed to eat. He said he had lost about 10 pounds in the previous week. I can’t remember what he said his platelet count was, but it wasn’t good and all the not good numbers have run together now.

He said it was the worst bus ride of his life and getting himself TO the bus stop was even worse. Walking the 15 minutes with his luggage left him weak and shaky. I think he managed to go all 5 hours without incident, and he was thankful.

I didn’t see them until afternoon the next day. We were sitting on the couch talking when he just got up and went to the bathroom and was sick. The Dane said “that’s what he does”.

We talked about his new doctors, two men that they seemed to like, who had been helpful. The Boy had been texting with one while we were visiting. The doctor told him he wanted to try a new drug therapy called WinRho. The Boy had it 10 years ago and the only thing I can remember is it didn’t work and it caused him to throw up. Also, as an afterthought on his last visit, his doctor had done a blood test for something called H Pylori, a bacteria infection that can sometimes trigger ITP.

H. pylori is a spiral-shaped bacterium commonly found in the stomach.

Although it is not known how H. pylori infection is spread, scientists believe it may be contracted through food and water. According to the National Institutes of Health, approximately 20% of people under 40 years old and half of adults over 60 years old in the U.S. are infected, with higher rates in developing countries.

The doctor seemed surprised but said The Boy tested positive! He prescribed three antibiotics for it and a new anti nausea medication.

Can I just tell you that it was a turning point? The new anti nausea medication was awesome! He was careful eating for a day or so and I don’t think he was ever able to enjoy much coffee, but he was never sick again! He ate all weekend long, lots of FOOD!

He seemed better, he was off the couch, they went a few places, he ate salami from his favorite Italian market, chicken Madeira, his Dad’s mac and cheese and quite a few other things, all without incident!

I am pretty sure their bus ride home was much better.

I knew he had an appointment with his doctor on Tuesday. I called on the way home from a new Bible study I am going to at church. The news was alarming. They had started the WinRho and he fairly quickly turned beet read and said his throat started to hurt. He mentioned things like a flurry of people and activity around him and an oxygen mask, and slowing the infusion way the heck down. He was doing better by the time I called and was watching game shows and Rachel Ray with the other patients. He said they had gotten him Boston Market for lunch and given him doughnuts and Diet Coke and generally were very kind to him. I’m telling you, God grants that Boy favor everywhere he goes!

His doctors said they wanted to do this medication once a week for a month. If it didn’t work, I guess then they would do The Brew.

When we messaged later that evening, he said his back was killing him. This was about where I had my own little reaction. Doctors have been FLOODING his poor body with medications since May, with very limited or no success. He is WAY more susceptible to any and all side effects this go round for some strange reason. He has been taking pain medication for 4 months almost continuously. He was suffering. His ITP was seriously out of control.

I have had the thought before, HOW WILL HE LIVE? What will his life be like?

I was sad. And discouraged. And sad again. It was a low point People. I left a note on the counter to tell Honey and the Girls to pray. That was all I knew to do.

I went to BSF the next morning.  I thought I was going about my business as usual, but evidently it showed. Jip the Farm Dog knew. Others thought something awry.

I called The Boy after I left. He sounded better! He then told me something he had neglected to tell me on Tuesday. Before the WinRho infusion, his platelet count was 139,000! HOW DID HE NOT TELL ME THAT???????

His doctor thinks it may have been the H Pylori. He has been on antibiotics for a week now and his counts have risen dramatically, almost to normal!

The last time he had treatment for ITP 10 years ago, he did not go into remission until 5 months after receiving the immune suppressant therapy. Even then, not until after he had been treated for a truly awful ear infection. After two antibiotic treatments for the heinous ear infection, his platelet count inexplicably, slowly returned to normal. Maybe he had H Pylori then too!

Can it be this simple? After all these years and hundreds of thousands of dollars in healthcare and medications???? He can achieve remission with about $20 worth of antibiotics?? All pain free?????

I think I said it a week or so ago, GOD SHOWS UP. Even if this is not completely it, it’s an amazing turn of events! It’s like God dropped the thought into the doctors brain to do this test. The Boy said the doctor’s explanation for doing the blood test was “ it can’t hurt.” That seems like an admission of a flat out Hail Mary pass to me.

His doctor said he wants The Boy to finish the WinRho and has already lessened his dose of Promacta. He predicted that The Boy would have a long remission. He actually said that.

Remember that verse that God has had rolling around in my brain for the last couple of years?

Is anything too hard for the LORD?  Genesis 18:14.

No. No, apparently not.

Potent Quotable

Our pathways often twist through stormy landscapes; but when we look back, we’ll see a thousand miles of miracles and answered prayers. We’ll grow stronger along the way, and we’ll praise Him more heartily. Over the storm clouds is the Covering Presence.

David Jeremiah

The Weekly Sy

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Pinterest

What do you think Honey? Honey?

Easy DIY Landscape Ideas  Darcy, maybe this would be a short-term solution until extruded concrete is in the budget.

Spinich cheese lasagna rollups. Yes please.

Lasagna Rolls- YUM! These Look Amazing!

True.

Awesome verse! No fear, be still, He will fight for you. Exodus 14:13-14. | See more about the lord, scriptures and scripture verses.

Keelyody? For the sisters?

How To Make Easy Peasy DIY Christmas Gifts

Love.

Up close

Good thing.

15 Inspirational Quotes of the Day 1

Wednesday Hodgepodge

I am happy to greet fall and kiss both its cheeks! The cooler temperatures are quite delicious. We are just seeing some color on the trees up here in The Mitten. A big thank you to our hostess Joyce for gathering us every week to talk about stuff!

1. It’s fall. Y’all. My favorite season of the year! What’s something you love to do this time of year that makes you feel it’s officially fall? And unrelated to that, do you ever say-‘y’all’?

I do say Y’All!!

Fall is my favorite season also. I feel like that is disloyal to summer, which I also love, but I have to tell the truth. I love the colors, the bright, cool days, wearing some real clothes, the feeling of a new fresh start, even more of a fresh start then the New Year.

I feel like fall is officially here when I put on socks and boots. And jeans. No turning back once you do that.

2. When did you last have a falling out with someone? Has it been resolved?

There was some falling last year. I am hoping it is completely resolved.
3. A song you love with the word ‘fall’ in it’s title?

I goggled it and I guess I will say Free Falling by Tom Petty. That song is not my favorite, but I do like Tom Petty. So there you go.
4. What’s something you’ve recently let ‘fall by the wayside?’

We have let a lot fall by the wayside this summer, Honey’s schedule has been a real killjoy. We had big plans to refinish the deck, straighten out our garage, re carpet the ramp out there, can salsa, and many other things that are not coming to mind. Oh well, no one’s going to prison. I still have hope we may accomplish a thing or two. 🙂
5. When did you last attend an event, read a book, watch a movie, try a new recipe, or visit a shop-town-tourist attraction that fell short of your expectations? In what way?

One of my favorite television shows was on this summer. I love to watch Who Do You Think You Are?, and I loved watching all the episodes. What fell short was the season was so stinking short! There have been 12 episodes in the past and this season there were only 5! That fell far short for me. I’m still not over it. Call me bitter.

6. Describe a time you said or thought, ‘The apple doesn’t fall far from the tree."

I think this all the time about our children! You will observe some quality and you know so clearly where they have gotten it!

I think it’s especially funny when the child realizes that the apple didn’t fall far from the tree!

I have a way of interacting with people that I know I learned from my Mother, and I see it in each of our children. She might have even learned it from her Mother!

They all three get their love of food, work ethic, and compassion from their Daddy.

Of course, those are some good qualities, I also see some not so good traits they have gotten from our trees. They will remain nameless!

Whether it’s learned behavior or genetic, I cannot say.

7. Was today better than yesterday? Why or why not?

Yes. Monday I worked outside doing manual labor. Tuesday I went to a Bible study at church and did some shopping. No comparison!
8.  Insert your own random thought here.

The Dane saw on the blob that I was looking for a pair of brown boots. I was trying to duplicate this look that I had seen on Pinterest. Or something along those lines.

teacher talk: outfits You'd have to do leggings not tights. Too see-through for the dress code.

She rallied the troops and they went in together to buy me a pair for my birthday! Wasn’t that thoughtful?

Unfortunately, the cute pair she bought hurt my feet because my feet are a giant pain in the rumpus. I went back to DSW to exchange them for some cute, orthopedic boots and these two were about the only pair that met my criteria, didn’t feel like I was standing on a board, didn’t hurt my big toenails, or didn’t pinch, and were brown.

I brought them home to try on with clothes, because as you know, I need options.

The pair on the left I feel are the best looking. My only complaint, and of course there is one, is the top of the boot hits me in a weird place on my kneecap. Like it gets caught there. I look forward to seeing if jeans can keep the kneecap safe.

The pair on the right are SO COMFORTABLE. My only complaint, and of course there is one, is they look very similar to my beloved black boots that I wore the heck out of all winter last year. This brown pair has a bit more buckle-age.

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If it comes down to kneecap displacement or similar looking boots, I am going to go for the COMFORTABLE look a likes. I guess I know what I like.

Thank you Kids for one of these pair of cute brown boots! And thank you to The Dane for being so stealthy!

Have a wonderful first week of fall.

Celebrating

We celebrated a couple birthdays this weekend!

Our friend Elyk and I made our birthday wishes on the same yummy chocolate peanut butter cake.

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Beeve was in attendance, as were The Boy and The Dane, who were in for the weekend. They brought Goomba’s birthday present because they may not see him again before his October birthday. A Nerf gun!!!!!! He is all about the weapons! They are watching Elyk get annihilated here.

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They took turns being the target. Elyk, borrowing Abby’s wheelchair, is hunting…..

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a sweaty boy!!!!!

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Stacey and The Grandpa were in the quieter section of the room where no ammo was flying.

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They prey. Or the hunter, depending on whose turn it was.

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Goomba was trying his hand at Honey and Mousey’s “duck call”. Roll your fingers together, pinky straight up, and say girl, girl, girl real fast. Sounds like a duck call! Not everyone could do it. Mousey is queen! The Queen would not let me take her picture. Nor would Honey. Party Poopers.

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Goomba is a fan of The Boy. And The Dane.

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Their tough faces.

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Three bad mothers.

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Then it was The Ab-Cat’s turn to do the bothering! She pushed him away…

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but he kept coming back for more!

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The old arm around the waist move,

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with a tickle to weaken him,

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he’s buckling,

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he’s going D.O.W.N.!!!!!!!

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She pinned him!!! Just like she did The Boy until he was a teenager!

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It was a fun night!

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Potent Quotable

As long as we have unsolved problems, unfilled desires, and a mustard seed of faith, we have all we need for a vibrant prayer life.
John Ortberg

The Weekly Sy

He is with a cat sitter again this weekend,

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but he knows who his people are.

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Life By Number

I saw this idea over at Joyce’s From This Side of the Pond and did what I do best, copy. With a few alterations!

2-number of states I’ve lived in
6-number of cities I’ve lived in
2-number of countries I’ve lived in
3 and 1/2?-number of miles from my closest family member
1-number of siblings I have
4-number of years older I am than my youngest sibling
3-number of children I have

1 and 1/2 (ish)-number of years I dated my husband before we tied the knot
30 in one month!-number of years the knot has been tied
0-number of current magazine subscriptions
Just under 100,000-population of the town I grew up in
Just over 90,000-population of the town I live in
5-number of different paying jobs I’ve had
26-number of years younger than my mom
32-number of years older than my youngest child
4-number of houses I’ve owned
1852-number of blog posts published as of now
1580 ish-number of days I am younger than my husband
10:30 PM-number on the clock at my normal bedtime
34-number of years since my high school graduation
10-number of pets I’ve owned
60-number of pots I have watered all summer (I counted twice!)

5-Number of days a week I have walked this summer

almost 4-Number of miles each day

5-Number of things in my make-up bag

Have a good weekend!

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